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Experienced. Collaborative. Responsive.

Amy Van Bergen has been a nonprofit leader since 1991 and served as executive director of the Down Syndrome Association of Central Florida until her retirement from fulltime work in 2016. Prior to that she was an award-winning newspaper

and magazine editor. In 2010, she helped found Down Syndrome Affiliates in Action, the first trade association for parent-support groups and she also served on advisory groups for both the National Down Syndrome Congress and

National Down Syndrome Society and consulted with Global Down Syndrome Foundation.

In addition to serving as an independent contractor for the Edyth Bush Institute for Philanthropy & NonProfit Leadership

at Rollins College, Amy has also recently served as the interim executive director for Down Syndrome Affiliates in Action and the Down Syndrome Association of Brevard. She has provided consulting, coaching and strategic planning services

to dozens of nonprofits of all kinds across the country. 

Since retiring in 2016 to spend more time with her grandchildren, Amy and her faithful sidekick Baloo,

a handsome Portuguese Water Dog who understands the true meaning of "support team," have volunteered and consulted for numerous nonprofit boards around the country, with a strong focus on leadership, mentoring, board governance

and fundraising. Amy values learning and is constantly engaged in her own personal and professional development, earning

her Diversity, Equity & Inclusion in the Workplace certification in 2022.

Amy understands, whether a small start-up, a family foundation or a well-established nonprofit, change is not always easy...

but it is always necessary to the growth of an organization and its mission. 


Whether your organization is looking for leadership today or you want to plan thoughtfully and strategically for the future, Amy (and Baloo, too) are ready to help you not only survive, but thrive into the future. Give us a call today to set up your first consultation.

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